I recently read the article “After years with no way to communicate, Newburgh teen finds her voice.” Like so many other similar stories, this heartwarming narrative gives an account of how a young women is using supported typing to “communicate.” The mother describes how this strategy has helped her teenage daughter to communicate and find her “voice.” Her daughter points to letters on a letter board while another person (the facilitator) supports the daughter’s wrist during the process of typing.
Although it is good to read positive stories like this, it is important that we alert parents and professionals to the pitfalls involved in describing “supported or assisted typing” as a communication strategy.
I recently went back to South Africa to see my mom, who is 88. She is in a nursing facility with 24-hour care, unable to walk, and at times quite confused. During the past year she had a couple of ischemic attacks, which rendered her unable to speak for certain periods of time. Recently, however, she has regained some speech, although verbal expression remains difficult. In spite of all these factors, I looked forward to our visit.
I talk to my mom on the phone from New York on a daily basis. Even though interactions are difficult, we are able to maintain interaction for sometimes shorter and sometimes longer periods of time. My visits with her are less focused on content and more on celebrating the joy of being together.
On a recent visit to South Africa, I realized again the importance of traveling to bring fresh perspectives as well as new insights into human interactions.
Truth be told, this is a difficult time politically in South Africa; and dealing with political views while visiting family can be interesting albeit quite disturbing at times. A political cartoon by Zapiro (Daily Maverick) stayed with me, as it connected to a dilemma that I encountered while visiting an elderly friend who lives on her own in Johannesburg. The cartoon depicts Nelson Mandela showing the way to go, while the current President of South Africa, Cyril Ramaphosa, is caught up in a moral whirlwind (windvane) without an escape route. The depiction of “being caught up in a whirlwind” struck me as I reflected on the situation that my 91-year-old friend finds herself in. Continue reading “Riding the Whirlwind: Human Interactions and Emotional Resonance”
I often find myself amazed at how difficult it can be to get parents, teachers, and therapists to engage in conversation with each other on topics of mutual interest. I wonder whether lack of collaboration is about not having time; or whether it is a reflection of the belief that working on “my own goals” as a professional is the expected practice within schools? Continue reading “A Culture of Collaboration Among Teachers, Therapists, and Parents?”